Seizure Treatment Plan - Day 6

Stella’s appearance and behavior are still alarming to us.  She is catatonic and seems extremely depressed.  We worry that she could possibly drown in the dog water bowl because her legs are still so unsteady and she continues to fall face-forward so we picked up the bowl each time we left the room.  She has little interest in eating or drinking but it appears it is because she is confused and cannot focus.  She has been lying on a kitchen rug for most of the day.  At times her eyes are open but she is completely glazed over.

A few times today I sat on the floor with her and she was shivering as if she were sitting out in the cold snow – although we have the air conditioning on it is set at the same temperature as for the past month.  Maybe this is just a result of the powerful drugs? 

Still two more days until we can confirm her treatment plan with the Neurologist.  We feel so startled by Stella’s current catatonic state that we have made our own decision to stop the Gabapentin and just give her the seizure medication.  She is completely non-functional, depressed and we cannot stand to see her quality of life diminished in this way.  If stopping the Gabapentin does not help with her catatonic state we have discussed the fact that if the Neuro tells us her current condition is likely permanent we will opt to discontinue the seizure medications altogether even if it means she continues to have seizures and it shortens her life.  We cannot and will not allow this to continue.